Just Because It’s In Black & White, It Doesn’t Mean It’s Accurate

It’s the day after Thanksgiving. My husband’s at work and has been since the middle of the night to greet all the wonderful people who help finance our wonderful life here in our little castle by the sea. I’m tired; feeling the effects of two days worth of cooking, dealing with my daughter’s stress level which seems to be shooting higher with each passing day and with no relief in sight, and I’m feeling like I might be getting “the crud”. Yuck.

The mail comes and in it are the results from Hayden’s October neuropyschological/developmental evaluation with the DD system. I begin to read the words; clinical, objective, based on the conversations between us and the neuropyschologist and the DD intake worker. And the tears come. Not because I disagree with their findings but because they are accurate in their black and white portrayal of what our son is and is not capable of. Sadly the “is not” column is tilting the scales. Hot tears stream uncontrollably. I want to scream out, “this is NOT the Hayden we live with! Yes he has delays but it’s not this bad everyday!! You’re not seeing him how God sees him, how WE see and interact with him everyday.” I can’t stop the tears now and quickly scoot into the downstairs bathroom as I hear my daughter come running down the stairs. I dont’ want her to see my crying. I try to pull myself together but I’m just sad. I’m sad that this is our son’s reality. I’m sad that this is how the world sees him; profoundly mentally retarded. Reality snaps me out of my woller as DP yells through the door, “Hayden got down (from the breakfast table)…..followed a few seconds later by, “Hayden got down, he’s playing with the remote control and he’s soaking wet!”.

I splash cold water on my face and face the reality that no one can deny. I still love my precious little man who was created to be a communicator, created to be a healer, who loves to sings praise songs and who didn’t ask for any of his reality. I choose to see our beautiful son the way God created him to be.

Advertisements

1 Comment

  1. Oh, sweetie. For what it's worth, I think that Hayden is beautiful with a kind and gentle soul. He will always be your love bug and he will touch more lives as time goes by than you could ever possibly imagine.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

The Diary of a Not So Ordinary Boy

My world, its ups and downs

4healthypaws

A Holistic Site for ALL Paws

WordPress.com

WordPress.com is the best place for your personal blog or business site.

Talking Math with Your Kids

Because children enjoy using their minds

The Never Say Never Home Schooler

A home school blog written by someone who NEVER, EVER thought she'd home school. This ain't your mama's idea of home schooling, but the kids are learning despite me!

Game4Learning

Fun Learning Resouces for Kids

ipledgeafallegiance

When will we ever learn?: Common sense and nonsense about today's public schools in America.

Left Coast Dad 2 Two

I Control The Remote When No One Else Is Home

Teacher to Mum

Whispered reflections about being a mindful parent

%d bloggers like this: