Category Archives: Down syndrome awareness Special needs

The Other “R” Word

Today you might have seen this splashed across various social media outlets. I think it’s pretty safe to say that anyone who would call themselves my personal friend probably doesn’t use the “R” word, or if they have in my presence, they’ve been corrected. It happens, I move on. It’s an ugly, ugly word that …

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The Screen Actors Guild Should Be So Lucky

October is winding down and much of the attention that the disability community is currently putting on Down Syndrome for the purpose of educating and empowering the general public will shift to some other worthy cause that deserves advocacy and systems change. But before the curtain closes entirely, I want to bring out onto the …

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Where’s Chuck Woolery When You Need Him?

“John and Susan Smith you’ve just won a brand new baby!! Come on DOWN!!” A game show announcer excitedly booms from the middle of the stage, “Charlie, tell them what they’ve won!”, the game show host adds. So John and Susan walk excitedly to the stage, carrying a little bundle wrapped in blankets, unsure exactly …

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Celebrating The Extra

October is National Down Syndrome Awareness month in the United States and to start it off last week I posted a little something on my FB page. Had I been really tech-saavy, I would have first copied what I had written and then pasted it here on my blog, but alas, you have not stumbled …

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Bump In The Road

Last Monday we found out that Hayden has to have another surgery because the ear canal that was just surgically enlarged closed in on itself….and around the surgical packing material that’s deep inside his ear canal. Not a good thing. So back to surgery we go. Tomorrow at 6am. NOT looking forward to this. When …

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Go Out There And Be A “Kathy”!

There’s not a lot of time left in National Down Syndrome Awareness Month, and I absolutely can not let the month end without paying HUGE homage to the person to whom we as a family owe so MUCH.  In fact, I’m positive we wouldn’t even be a family without her.  I first wrote this eight …

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Your Unborn Baby Can’t Wait To Meet You

It’s almost the end of October, which means it’s almost the end of Down Syndrome Awareness Month (or if you’re like my 11 year old daughter who’s been waiting for three months, it’s almost Halloween–a day I think is more about the “hype” for her than the actual day….but that’s another post).  Before my feeble …

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Just Because It’s In Black & White, It Doesn’t Mean It’s Accurate

It’s the day after Thanksgiving. My husband’s at work and has been since the middle of the night to greet all the wonderful people who help finance our wonderful life here in our little castle by the sea. I’m tired; feeling the effects of two days worth of cooking, dealing with my daughter’s stress level …

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