Category Archives: Down syndrome

The Screen Actors Guild Should Be So Lucky

October is winding down and much of the attention that the disability community is currently putting on Down Syndrome for the purpose of educating and empowering the general public will shift to some other worthy cause that deserves advocacy and systems change. But before the curtain closes entirely, I want to bring out onto the …

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Where’s Chuck Woolery When You Need Him?

“John and Susan Smith you’ve just won a brand new baby!! Come on DOWN!!” A game show announcer excitedly booms from the middle of the stage, “Charlie, tell them what they’ve won!”, the game show host adds. So John and Susan walk excitedly to the stage, carrying a little bundle wrapped in blankets, unsure exactly …

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Celebrating The Extra

October is National Down Syndrome Awareness month in the United States and to start it off last week I posted a little something on my FB page. Had I been really tech-saavy, I would have first copied what I had written and then pasted it here on my blog, but alas, you have not stumbled …

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Bump In The Road

Last Monday we found out that Hayden has to have another surgery because the ear canal that was just surgically enlarged closed in on itself….and around the surgical packing material that’s deep inside his ear canal. Not a good thing. So back to surgery we go. Tomorrow at 6am. NOT looking forward to this. When …

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Go Out There And Be A “Kathy”!

There’s not a lot of time left in National Down Syndrome Awareness Month, and I absolutely can not let the month end without paying HUGE homage to the person to whom we as a family owe so MUCH.  In fact, I’m positive we wouldn’t even be a family without her.  I first wrote this eight …

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Maybe There IS Something To This I.S. Thing Afterall

  For the past week I’ve been reading the epic fallout from a failed iPad giveaway on Ellen’s blog at http://www.lovethatmax.blogspot.com/.  Many of the over 200 comments from this giveaway that never happened, are authored by parents of kids who have been diagnosed with Infantile Spasms, a seizure disorder usually contracted by infants (hence the …

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Unrest In The Special Needs Community or Why I Bristle At Give-aways On Blogs

Let me start out by saying first and foremost, I am NOT condemning bloggers who give things away on their blogs or who run sweepstakes.  I don’t know why they do those things and it runs counter intuitive to why I blog (albeit intermittently at best), but hey, it’s your blog and if you want to …

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Can We Do This Without The Hype?

  Before I launch into what to some will no doubt seem like an Anti-Mother’s-Day speel, let me first say that I do “like” the concept of Mother’s Day.  Sort of.  I like being appreciated for my efforts (which on some days require herculean emotional and physical exursion) to rear my children in such a way …

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