Category Archives: special needs Down syndrome

The Other “R” Word

Today you might have seen this splashed across various social media outlets. I think it’s pretty safe to say that anyone who would call themselves my personal friend probably doesn’t use the “R” word, or if they have in my presence, they’ve been corrected. It happens, I move on. It’s an ugly, ugly word that …

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Where’s Chuck Woolery When You Need Him?

“John and Susan Smith you’ve just won a brand new baby!! Come on DOWN!!” A game show announcer excitedly booms from the middle of the stage, “Charlie, tell them what they’ve won!”, the game show host adds. So John and Susan walk excitedly to the stage, carrying a little bundle wrapped in blankets, unsure exactly …

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Bump In The Road

Last Monday we found out that Hayden has to have another surgery because the ear canal that was just surgically enlarged closed in on itself….and around the surgical packing material that’s deep inside his ear canal. Not a good thing. So back to surgery we go. Tomorrow at 6am. NOT looking forward to this. When …

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Another post where I realize I’m the one with challenges

I’m beginning to realize that my life is really just a series of long held beliefs colliding with reality.  Sometimes the collisions are messy, but if I shut up long enough, good things usually come from the wreckage. You know why they call it “Challenger Baseball”?  Because it challenges your long-held beliefs.  Because it makes …

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